Who we are
RareStorm™ is an Arizona 501(c)(3) nonprofit organization, established in 2019 (EIN 84-3305217). Our purpose is facilitating and supporting research efforts related to rare disease, and providing assistance to families struggling as a result of rare disease. The children and families facing rare disease are our heroes, and our work is dedicated to them.
How we help
Advancing research
Facilitating and supporting research efforts related to rare disease.
Helping families
Providing assistance to families struggling as a result of rare disease.
Our heroes
Honoring the children and families facing rare disease. Everything we do is dedicated to our heroes.
Support our heroes
RareStorm is a 501(c)(3) nonprofit. Donations are tax-deductible to the extent allowed by law.
EIN: 84-3305217
Get help / Contact
If your family is struggling with a rare disease, or you'd like to get involved, we'd love to hear from you.